Anyone have Crohns?

[JUSA]

Hate to pry into anyone's personal health, but curious if anyone has this and has advice on how to cope w/ it. I have a friend w/ a young daughter who is going through this, just had some of her colon removed, it's rough.

Just at a quick glance, seems like gut biome may have some impact on this. Anyone who has this, had their bacterias measured and taken probiotic strains to improve things?

Any dietary changes that improved things?

Any things like antibiotics or chit food that make it worse?

[Anachron]

I am Anachron.

Does that count?

[RayBoccini]

I have it (srs)

Been under control with the help of Humira pens for years now. So much so that I can barely notice it but I do accept that long term the risks of cancer and chit is there. I do plan on quitting the pens eventually but only if I can quit eating chocolate and sugary chit

The thing with Crohn's is that the trigger foods can vary from person to person. For me, too much coconut, alcohol, spicy stuff I avoid. Red meat is harder to digest so I stick to fish and chicken or plant based. The same with the medication, sometimes you can be lucky and not notice anything like me, others it's hell. I generally stay lean and don't overeat just to not provoke anything.

I haven't had any of my intestines measured for bacteria or removed like your friends daughter so I can't speak to that kind of management. Did she get the Ostomy bag?

[orangetide]

It's your chitty diet and the chitty things you eat. Had it when I lived with my parents and ate college cafeteria food. Since being on my own and cooking my own chit, 0 problems. Stay away from chit like remicade and humira unless you want to fuk up your immune system or get Hodgkins lymphoma.


Cut out sugar

Cut out sugar alcohols.

Clean up your diet, look for foods on low glycemic Index

You can get away with doing a chitty version of a keto diet.

Also do intermittent fasting.

Processed foods are loaded with extra chemicals and seed oils. Remove ALL processed foods.

[ParsleyTea]

I have an IBD condition and for simplification will tell others I have a Crohns's like disease, which is not entirely correct but it seems like everyone knows about Crohns due to drug advertising and what i have isn't known about by most.

Drugs, diet changes, supplements, and probiotics can all have a beneficial effect it seems. there is a good amount of research saying that sun exposure can be beneficial for IBD conditions also. The SCD seems to be the most popular diet with Crohn patients.

[Chowboy]

A good friend of mine spouse had it.


It ultimately got her.


It's bad joojoo.

[Kiop]

massive antinfalamtorry
agents help

but its a sick tough
diseases

Grape seed extract improves small intestinal health through suppressing inflammation and regulating alkaline phosphatase in IL-10-deficient mice
https://www.sciencedirect.com/scienc...56464615005186

The Potential of Natural Oils to Improve Inflammatory Bowel Disease
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10255559/

Supplementation of Bovine Colostrum in Inflammatory Bowel Disease: Benefits and Contraindications
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8009748/

[JUSA]

I haven't had any of my intestines measured for bacteria or removed like your friends daughter so I can't speak to that kind of management. Did she get the Ostomy bag?

Thanks for the reply, from what I understood she had one but this procedure allowed her to drop it.

[isawthesign]

Can you pass this onto your kids if you have it?

[buwbs]

Change diet

Problem is alot of people don’t want change the diet, these people are NPC

[NestBrah]

Cut out gluten. Try to avoid processed foods too, but gluten is the key.

Have seen people with Crohn's and other autoimmune conditions go back to 100% normal by cutting out gluten. Wheat is the killer.

[aaron501]

got a cousin that has it, he's had parts of his colon removed already, but at this point he's considering just using a colostomy bag because of the pain he goes through daily

i think he got it because he was an invitro-baby which are more likely to get genetic defects like crohns, down syndrome etc

[mrdot]

i know someone with crohns and somehow he got his doctor to prescribe him pharm grade HGH for it

[kusok]

Ribeye and water only.

100% guaranteed to cure it completely. Endless people have done this. 100% srs. May need a couple months thou to see results.

Any reduction in carbs will improve the condition. Keto will improve it further. Carnivore will be a life changer. This is how Salisbury steak came about. The doctor by that name noticed that people get cured of every autoimmune condition like that when he fed them Nothing but steak and water.

Most reactions are to plants. Nobody is allergic to beef or to water. An obvious thing to do is such an elimination diet.

In case you think this is some youtube conspiracy Shawn baker stuff I’m parroting, no, entire books have been written by phds in this area. There are human case reports, and studies, literally the leading researchers and doctors who specifically specialize in this stuff put people on these diets and cure their patients. You just have to take your head out of your arse and do the fukin diet.

[MiscMathematician]

avoid any flour based products. see symptoms improve

[LeftistGent]

Ribeye and water only.

100% guaranteed to cure it completely. Endless people have done this. 100% srs. May need a couple months thou to see results.

Any reduction in carbs will improve the condition. Keto will improve it further. Carnivore will be a life changer. This is how Salisbury steak came about. The doctor by that name noticed that people get cured of every autoimmune condition like that when he fed them Nothing but steak and water.

Most reactions are to plants. Nobody is allergic to beef or to water. An obvious thing to do is such an elimination diet.

In case you think this is some youtube conspiracy Shawn baker stuff I’m parroting, no, entire books have been written by phds in this area. There are human case reports, and studies, literally the leading researchers and doctors who specifically specialize in this stuff put people on these diets and cure their patients. You just have to take your head out of your arse and do the fukin diet.

lol so do you just eat 2.2k calories worth of ribeye everyday? dem macros tho

[Islandboyo]

I had it as a young lad and it f*cked me up pretty bad for like an entire year. Ended up having to do a month long stay in the hospital before it was put under control.

I had a flare up once a year since then up until I was 18 years old. After turning 18 and leaving to go live somewhere else all of a sudden I stopped getting flare ups, and stopped taking the daily medication. I'm 30 now and have never gotten another flare up since back before 18 years old.

My diet changed when I moved so I suspect in my case it was purely what I was eating that was making me sick. I hate less processed food, lots of vegetables, lots of healthy seasonings (curry, turmeric)...... Good home cooked Caribbean food is very healthy and does not include processed items. This saved me.

I would say to anyone suffering from crohns to get in touch with your cultural roots and eat the types of food that your grandparents would eat. Do NOT eat traditional American cancer food. IF you have European roots, look into cuisine from your European country.

[kusok]

lol so do you just eat 2.2k calories worth of ribeye everyday? dem macros tho

What’s wrong with those macros?

[freeburn]

Diet diet diet


No chrons but I had part of my colon removed due to diverticulitis.

Anyways yeah I started taking probiotics and eating more carefully. As unlucky as she is it will be good for her to form good eating habits at a young age.

My problem was that I was working out and staying in good shape in my 20s so I felt like I could eat whatever I wanted. I didn't really get that food discipline until I was in my 30s and had the stomach problems.

"you are what you eat" is one of the most underrated sayings in human history.

[Hutrapper]

My mother had Chrohns and colitis my entire childhood. She'd try different diets cutting stuff out one by one. The doctor would suggest something, then something else. Strictly veggies and meat....didn't ever help.

She had a massive surgery that removed most of her lower intestine, and a complete colostomy. She poops in a bag now.

While her case was very severe, the surgery totally changed her life. She can function completely normally now.

Took 10 ish years of trying everything to come to that.

[kusok]

My mother had Chrohns and colitis my entire childhood. She'd try different diets cutting stuff out one by one. The doctor would suggest something, then something else. Strictly veggies and meat....didn't ever help.

She had a massive surgery that removed most of her lower intestine, and a complete colostomy. She poops in a bag now.

While her case was very severe, the surgery totally changed her life. She can function completely normally now.

Took 10 ish years of trying everything to come to that.

- trying everything

- eating plants that obviously caused the reaction

[resoog]

I am Anachron.

Does that count?

[BigElephant]

I really feel for people with that type of condition. Whether it's Chrohn's or some type of colorectal cancer, I could never live with a colostomy bag, even temporarily.

[jimbob007]

Lifelong chronically bad IBS-only time I passed blood was when I passed a gallstone. Deathstroke has Ulcerative Colitis-he got some kind of surgery/injections for it.

[JackSquat2024]

My son has Crohns, SAPHO and CRMO, all autoimmune, the last two are extremely rare, but I imagine the source is of similar origin. This all started out of the blue last summer, perfectly healthy kid up until that point. He's improved with Remicade and Methotrexate injections, but I don't want him on this garbage long term, the Drs. don't seem to know squat and pretty much indirectly threaten CPS if we don't follow their treatment plan when you mention diet and alternatatives. Been kind of at a loss about it all.

[JUSA]

Up to post #5 on reps. Will get as many of you as I can, some of you guys are on recharge but I'll work at it.

Update: #22

My son has Crohns, SAPHO and CRMO, all autoimmune, the last two are extremely rare, but I imagine the source is of similar origin. This all started out of the blue last summer, perfectly healthy kid up until that point. He's improved with Remicade and Methotrexate injections, but I don't want him on this garbage long term, the Drs. don't seem to know squat and pretty much indirectly threaten CPS if we don't follow their treatment plan when you mention diet and alternatatives. Been kind of at a loss about it all.

That is tough. Maybe it's easy for me to say, but time to get new doctors -- the threats alone are unacceptable.

In the meantime, I'd follow their recommendations, which is always just drugs and sometimes surgery, but work on my own to try and find more holistic ways to treat it. Nothing crazy that might endanger your son but no harm in cutting out glutens, wheat or stuff like that if your kid is up to trying.

[JackSquat2024]

Up to post #5 on reps. Will get as many of you as I can, some of you guys are on recharge but I'll work at it.

That is tough. Maybe it's easy for me to say, but time to get new doctors -- the threats alone are unacceptable.

In the meantime, I'd follow their recommendations, which is always just drugs and sometimes surgery, but work on my own to try and find more holistic ways to treat it. Nothing crazy that might endanger your son but no harm in cutting out glutens, wheat or stuff like that if your kid is up to trying.

Thanks for the reply.

Yeah, it's just tough because there are so few pediatric Drs. in the area and the three diseases, two only a few treat in the entire country and they have been willing to work with the experts, then insurance and all that and it becomes a nightmare to switch things up.

We've already tried cutting out inflammatory foods, gluten etc., but he's a kid too so a fine balance. If it were up to me, I'd have him go full keto, but doing that with a kid I can't fathom his quality of life.

[NEETvestor]

An earlier post mentioned the specific carbohydrate diet. I don't have Chron's but know someone who improved a lot after starting SCD. Reading Breaking the Vicious Cycle by Elaine Gottschall is how he discovered the diet... your friend may find the book worthwhile if he's not already familiar w/ it.

https://www.goodreads.com/book/show/..._Vicious_Cycle

[dopamine72]

I remember reading some mind blowing chit about how gluten actually cuts the inside lining of our intestines and whatever food that gets into those cuts your body will form an immunity (allergy) against (because the food bits are too large)

I guess that's why whatever you're allergic to can be so fkin random

Of course there are other causes for the disease the above is just one weird example of how it can happen

It gets pretty gnarly when you start to understand pesticides in grains, on produce etc

Then we got GMO, hormones, mRNA, antibiotics etc in our food supply

We're consuming allot of poison as a whole and things need to change ASAP

I never had Crohns but had pancreatitis and had to eat nothing but soup, jello and broth for 6 months..Went from 215 - 178 pounds chit was awful...Can't imagine Crohns I'd be doing research every day because the human body can heal itself...

I'm 100% certain if you change diet correctly the Crohns would stop

[kusok]

My son has Crohns, SAPHO and CRMO, all autoimmune, the last two are extremely rare, but I imagine the source is of similar origin. This all started out of the blue last summer, perfectly healthy kid up until that point. He's improved with Remicade and Methotrexate injections, but I don't want him on this garbage long term, the Drs. don't seem to know squat and pretty much indirectly threaten CPS if we don't follow their treatment plan when you mention diet and alternatatives. Been kind of at a loss about it all.

Millions of comments every day from people curing these conditions with keto and especially carnivore diet,


The most expensive, most advanced private clinics at this point just blindly put people on these elimination diets and get tremendous results,