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  1. #31
    Unregistered Ninja MadNinjaSkills's Avatar
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    Subscribing to this thread! My sister is stage4 metastatic breast cancer. Always open to resources/information to help her in any way I can.
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    Originally Posted by Thai_Clinch View Post
    my thoughts and prayers are definitely with you brother, i mean that sincerely.
    Thanks man, I appreciate that. This whole experience has really opened my eyes and the support I have received from complete strangers, family and friends has blown me away. I guess there really is something positive to take away from any situation.
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  3. #33
    Registered User StoliFun's Avatar
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    Is there anything better for nausea other than medical herbs? My friend has brain cancer. He's had the craniotomy and radiation, and he starts chemo this week. But he's had severe nausea since the radiation a couple months back, and with the chemo it's only going to get worse I imagine.
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  4. #34
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    Originally Posted by StoliFun View Post
    Is there anything better for nausea
    Yes, they have anti-nausea medications that they can deliver either by IV or in pills and the hospital's pharmacy should have both. Have your friend speak to the doctors about his nausea and if they can't do anything, have him speak with a palliative care specialist. Palliative care is not just for "end term" pain relief.
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  5. #35
    Platinum Account heatbags's Avatar
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    Originally Posted by redraider86 View Post
    My update: Had all my body scans/blood work done, still in remission! Treating myself to a massage next week to celebrate

    This news delights me! I'm curious...do you have a plan, so to speak, for remission?
    How long have you been in remission and what did you have if you dont mind me asking.

    Definitely see and enjoy life much differently now.

    My mentor gave me this book - https://www.amazon.com/Cancer-50-Ess.../dp/B002PJ4L2M and I have passed it on to many other cancer patients since.

    Very organic, I juice daily. I cut out a lot of meats, eat more fruits/vegetables, white meat only. i cut out a lot of processed foods and refined sugars, quit smoking years ago and i dont drink hard anymore. Maybe a glass of wine or whiskey every now and then. try to cook all my foods properly, no microwave.
    My strength and physique still isnt where it was prior to cancer but im happy and feel healthy.

    most importantly staying positive and stress free.
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  6. #36
    Someone's Dóttir redraider86's Avatar
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    Originally Posted by Zer0Wolf View Post
    Survivor checking in. Been in remission since 03-2015. N/H Lymphoma, High Grade Metastatic Liposarcoma. Back to work and kicking ass.
    Congrats, almost at that two year mark! What's the coolest thing you've done since you've been in remission?

    Originally Posted by Jyates383 View Post
    Nice to see this kind of thread here, as I guarantee almost anyone can relate and has been affected by cancer in one way or another. Stage 4 colon cancer here that has metastasized to my liver. First round of chemo has been ineffective and it has grown slightly on my liver but, has not spread anywhere else. The colon part of this is relatively basic and could be removed at any time. The liver is what is disheartening, as they cant/wont operate when the disease is over a certain size. Last Tuesday I went in for liver directed radiation, called radio embolization with theraspheres. Starting another round of chemo with a different drug in a little over a week too. Good luck out there everyone.
    Good luck to YOU. I'm not sure where you live but I make pretty good casseroles, so if you're anywhere between NYC and DC and interested PM me and I'll bring ya some food. You're absolutely in my thoughts, please update us and let us know how this round of chemo goes.

    Originally Posted by MadNinjaSkills View Post
    Subscribing to this thread! My sister is stage4 metastatic breast cancer. Always open to resources/information to help her in any way I can.
    I'm really sorry to hear that, and will keep your sis, you, and your family in my thoughts. I'm pretty hesitant to recommend or give advice around that. Is there anything in particular she's struggling with? I'm fairly well-versed in symptom management/palliative stuff.

    Originally Posted by StoliFun View Post
    Is there anything better for nausea other than medical herbs? My friend has brain cancer. He's had the craniotomy and radiation, and he starts chemo this week. But he's had severe nausea since the radiation a couple months back, and with the chemo it's only going to get worse I imagine.
    Zofran works pretty well. Ginger is kind of herb-y but it does work. I used ginger candies or lollipops and it really helped. FWIW 'herbs' are the only thing that totally stopped my nausea and brought my appetite back.

    Originally Posted by heatbags View Post
    How long have you been in remission and what did you have if you dont mind me asking.

    Definitely see and enjoy life much differently now.

    My mentor gave me this book - https://www.amazon.com/Cancer-50-Ess.../dp/B002PJ4L2M and I have passed it on to many other cancer patients since.

    Very organic, I juice daily. I cut out a lot of meats, eat more fruits/vegetables, white meat only. i cut out a lot of processed foods and refined sugars, quit smoking years ago and i dont drink hard anymore. Maybe a glass of wine or whiskey every now and then. try to cook all my foods properly, no microwave.
    My strength and physique still isnt where it was prior to cancer but im happy and feel healthy.

    most importantly staying positive and stress free.
    Over a year, and I had Melanoma.

    You're an inspiration, srs. Funny, we have pretty similar diets and lifestyles as well. I've found keto with TONS of green veggies to work well for me, so while I don't juice I drink a spinach smoothie every day and I swear by it! The refined sugars and processed stuff went out the door as well (for the most part, I'm still human lol.) The stress part needs some work. I'm definitely going to take what you said to heart. Thank you.

    I'm proud of you. Keep it up. Being happy and having your health will always be more important than your physique, always.
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  7. #37
    Banned Zer0Wolf's Avatar
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    Originally Posted by redraider86 View Post
    Congrats, almost at that two year mark! What's the coolest thing you've done since you've been in remission?



    Good luck to YOU. I'm not sure where you live but I make pretty good casseroles, so if you're anywhere between NYC and DC and interested PM me and I'll bring ya some food. You're absolutely in my thoughts, please update us and let us know how this round of chemo goes.


    I'm really sorry to hear that, and will keep your sis, you, and your family in my thoughts. I'm pretty hesitant to recommend or give advice around that. Is there anything in particular she's struggling with? I'm fairly well-versed in symptom management/palliative stuff.



    Zofran works pretty well. Ginger is kind of herb-y but it does work. I used ginger candies or lollipops and it really helped. FWIW 'herbs' are the only thing that totally stopped my nausea and brought my appetite back.


    Over a year, and I had Melanoma.

    You're an inspiration, srs. Funny, we have pretty similar diets and lifestyles as well. I've found keto with TONS of green veggies to work well for me, so while I don't juice I drink a spinach smoothie every day and I swear by it! The refined sugars and processed stuff went out the door as well (for the most part, I'm still human lol.) The stress part needs some work. I'm definitely going to take what you said to heart. Thank you.

    I'm proud of you. Keep it up. Being happy and having your health will always be more important than your physique, always.
    I would have to say the coolest thing I have done is went on a multi state motorcycle run to benefit children's cancer. Over 2500 riders.
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  8. #38
    Registered User StoliFun's Avatar
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    Originally Posted by TheSteve39 View Post
    Yes, they have anti-nausea medications that they can deliver either by IV or in pills and the hospital's pharmacy should have both. Have your friend speak to the doctors about his nausea and if they can't do anything, have him speak with a palliative care specialist. Palliative care is not just for "end term" pain relief.
    Thanks, m8. I'll bring this up with him. He doesn't advocate enough for himself with his doctors.


    Originally Posted by redraider86 View Post
    Zofran works pretty well. Ginger is kind of herb-y but it does work. I used ginger candies or lollipops and it really helped. FWIW 'herbs' are the only thing that totally stopped my nausea and brought my appetite back.
    I'll ask about zofran. Yeah, I just made him some ginger simple syrup to put in tea and club soda. And I kind of suspected that 'herbs' would ultimately be his best remedy. I know it was great at helping him sleep and relieving pain without putting him in an opiate fog. It wouldn't surprise me if 'herbs' proved the best nausea remedy too.
    Last edited by StoliFun; 01-27-2017 at 12:37 AM.
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  9. #39
    Registered User CTSV648HP's Avatar
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    Like to give a shout out to our own stephenhawking brah. His thread affected me, but he didn't make it. He's still remembered.
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  10. #40
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    Not ready to get into the story how i know some of this stuff but will post some advice


    - Look into cachexia and talk to your doctor about it.

    - Keep Clorox wipe and hand santi around you always

    - Get the flu shot and anyone taking care of you should get the flu shot as well

    - Get genetic tests done and don't ignore pain or other symptoms. Some times you have to push your doc to get testing done.

    - Your insurance will most likely cover medical supplies (hospital bed, wheel chair, oxygen,,,lots of other things)

    - Docs are quick to push chemo on patients. If there are other treatment go for it, ask for it , demand it

    - Get all of your affairs in order ASAP. Power of attorney, passwords and pin numbers to accts. Write everything out or use an excel spread sheet

    - Check your life insurance (if you have one) some will pay out most of it out if you are terminal. But remember that you will need to income tax on it.

    - biotene mouth wash... Get it use it

    - If you are using one of those bedside commode, line the bucket with a trash bag and change after each use. Makes clean up easier

    - Try to get some exercise every day. Even if it means using a walker to walk around your house







    From one of the top oncologist in the US: (not word for word of course but what I remember)

    - "Sometimes you can get cancer without having any of the predispositions or taking part in behaviors that can increase your risk. I have seen patients that do all the right things to lower their cancer risk (no smoking, no drinking, eating right, exercising) in their lives, but then later in life, develop rare aggressive types of cancer. While on the other end, I have patients who keep smoking and drinking and will go years into remission and will die of other causes, unrelated to their cancer.

    But this is not me telling you to not take care of yourself, but do what makes your feel good and happy......and healthy."
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  11. #41
    Someone's Dóttir redraider86's Avatar
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    Originally Posted by Zer0Wolf View Post
    I would have to say the coolest thing I have done is went on a multi state motorcycle run to benefit children's cancer. Over 2500 riders.
    That's absolutely incredible. Reps for life for that one.

    Originally Posted by StoliFun View Post
    Thanks, m8. I'll bring this up with him. He doesn't advocate enough for himself with his doctors.




    I'll ask about zofran. Yeah, I just made him some ginger simple syrup to put in tea and club soda. And I kind of suspected that 'herbs' would ultimately be his best remedy. I know it was great at helping him sleep and relieving pain without putting him in an opiate fog. It wouldn't surprise me if 'herbs' proved the best nausea remedy too.
    Zofran seems to be almost a given. They just put it in my IV along with the other meds when I went in.

    PM sent.

    Originally Posted by CTSV648HP View Post
    Like to give a shout out to our own stephenhawking brah. His thread affected me, but he didn't make it. He's still remembered.
    Indeed, there are several bb.com members who passed away from this awful disease. I remember his threads, I was lurking then. Didn't he go as a pirate for Halloween one year? lol love it.
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  12. #42
    The NBA is trash. Thai_Clinch's Avatar
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    Originally Posted by StoliFun View Post
    It wouldn't surprise me if 'herbs' proved the best nausea remedy too.

    When Valerie was going through her cancer her friends brought the herbal remedies in butter and brownie form. seeing how it worked on her, along with the dozens of **** they had her on...i never saw her smile and feel as good as she did thanks to it.


    Dont believe it cures it at all but it damn sure seems to help ease them.





    (off topic but i have a pretty funny story about the brownies we brought her...probably not appropriate on the misc though. lmao)
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  13. #43
    Someone's Dóttir redraider86's Avatar
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    Originally Posted by Thai_Clinch View Post
    When Valerie was going through her cancer her friends brought the herbal remedies in butter and brownie form. seeing how it worked on her, along with the dozens of **** they had her on...i never saw her smile and feel as good as she did thanks to it.


    Dont believe it cures it at all but it damn sure seems to help ease them.





    (off topic but i have a pretty funny story about the brownies we brought her...probably not appropriate on the misc though. lmao)
    Yeah this is tricky. We can't talk about this stuff in specifics on the forums but it helps. Everyone knows that. lol I make my own oils (especially CBD) and use them daily.

    Quality of life is the most important part of caring for patients. Even if it doesn't 'cure' them (and I know many folks have different opinions on that) it still helps, and it's important.
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    Originally Posted by redraider86 View Post



    Good luck to YOU. I'm not sure where you live but I make pretty good casseroles, so if you're anywhere between NYC and DC and interested PM me and I'll bring ya some food. You're absolutely in my thoughts, please update us and let us know how this round of chemo goes.
    Thank you for the offer, I do love a good casserole but I'm a little farther south in Florida. For the nausea question, like others have said Zofran is pretty common and seems to work well for me. I also have promethazine which does make you a little drowzy, best to take at night. Zofran has a regular pill you swallow and also one that can dissolve on your tongue if you are too nauseous to drink/swallow. There is some kind of nausea medication that goes in the back door, if you are really desperate. Pretty weird the doctor hasn't already prescribed these, I was given zofran and promethazine weeks before I even started chemo. They should be on top of these kind of things.
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  15. #45
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    Cancer sucks. Mother died in her fifties (one week before 9/11), sister last last year. I have lost count of the people who died from cancer I knew.

    I will say, there's some really promising treatments now, and some breakthrough stuff coming on line. While people fight about how many people showed up for Trump in DC, etc, cancer researchers are making real strides and getting little attention.

    Less people are dying from cancer.
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    RN uploading ΩΩΩ...💋 zizzfanatica's Avatar
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    Inn

    Will post recipes that work for nausea


    Much love
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    Originally Posted by zizzfanatica View Post
    Inn

    Will post recipes that work for nausea

    Much love
    I'd appreciate that. Before radiation, he used to use sriracha like ketchup and order curries Thai hot. Now his stomach gets upset by Italian sausage.
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    in. **** cancer.
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    I had testicular cancer in 2015.. posted this at the time: http://forum.bodybuilding.com/showth...post1382739423

    The feeling you have at the time is surreal. The main positive to come out of it for me, was that many of my friends went to get themselves checked out after having lumps/bumps down there that they'd ignored for ages. Nothing came of this, though it's all about awareness at the end of the day.

    Good luck to anyone going through it right now, hope you stay strong.
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  20. #50
    I can confirm I am title ShayZ's Avatar
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    Originally Posted by heatbags View Post
    In on this.

    Stage 2 Lymphoma Hodgekins Type IIb, its been 2.5 years now
    Cleared or still have it? Thats what I had. ABVD Chemo and radiation.

    Originally Posted by Zer0Wolf View Post
    Survivor checking in. Been in remission since 03-2015. N/H Lymphoma, High Grade Metastatic Liposarcoma. Back to work and kicking ass.
    GJDM

    Originally Posted by Jyates383 View Post
    Nice to see this kind of thread here, as I guarantee almost anyone can relate and has been affected by cancer in one way or another. Stage 4 colon cancer here that has metastasized to my liver. First round of chemo has been ineffective and it has grown slightly on my liver but, has not spread anywhere else. The colon part of this is relatively basic and could be removed at any time. The liver is what is disheartening, as they cant/wont operate when the disease is over a certain size. Last Tuesday I went in for liver directed radiation, called radio embolization with theraspheres. Starting another round of chemo with a different drug in a little over a week too. Good luck out there everyone.
    You can do it bro. Stay positive and keep grinding, its what we have to do.

    Originally Posted by JustBulk View Post
    not sure if you rmb me...is ShayZ ok? srs
    Sup man. Well cancer is gone, but I have a few small things wrong with me. They are honestly stressing me out.
    RR86 please dont link the wifey to this thread, I just dont know how to express myself in person at times, and I consider this a different circle. I dont want to stress her out with my feelings...

    I've been really down really. I don't know what to do.
    I really thought this was all over with but all these things are adding up and killing me inside. I guess I just am here to vent.
    I have thrombocytopenia, which is low platelets...
    - Julyish, platelets dropped to 23,000, when I had cancer they dropped to 43,000, which is the lowest they had been. Well, 23,000 scared me so I got a cat scan and it was all clear.
    - Docs tried Dexamethasone, and it increased my platelets for a few weeks and they crashed back down.
    - Docs put me on Predinosone of 80 mg, it worked for a few weeks and they crashed back down.
    - Last week I felt something wrong, asked to get bloodwork done 3 days earlier than usual, and platelets were at 6,000. Anything below 10,000 is essentially critical.
    - Admitted to hospital, got IVIG plasma infusions with IV drip.
    - 3 days later docs expected my platelets to be around 35,000 or so... Just 9,000.
    - Got an IV drip of rituxan Friday, going Monday to get IVIG again, and then Rituxan again thursday. This will continue for the next 6-8 weeks.

    Its depressing having to essentially go back to the "chemo" room, even though I dont have cancer.
    Its hard to be strong when I have so many people depending on me.... I have my employees at work, my sister whos my business partner, my mom and dad who rely on me every month to help support them, my little nephew who is just 4 months old, and I want to be there for him, and of course my wife. She puts up with everything, I know she doesnt want this, she didnt sign up for it, it isnt fair to her.

    When I say its all adding up its because I also have these issues.
    - Asthma out of no where. PFT last year had me at 99%, this year, 35%. My lungs are only blowing out 35% of estimated volume, meaning I am at COPD levels. No one knows why
    - Hypothyroidism, radiation killed my thyroid gland.
    - Skin issues. Doctors dont know what it is. Believe I have a connective tissue disorder like lupus but they arent sure really... My skin is just ripping if that even makes sense.

    I have been to Mayo Clinic, seen about 20 doctors there literally, have seen 10 specialists in Atlanta too. No one really knows what the skin or asthma issues. I guess they understand the platelet issue, but now theyre also talking about removing my spleen. Its just a lot.
    RIP mainsqueeze530

    y u leave us so early bro?
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    Repping all CA. fighters , hope yall stay strong,recover and better

    In God speed


    Fukc cancer!
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  22. #52
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    Originally Posted by ShayZ View Post
    Its just a lot.

    You're one tough mother ****er and what you're going through on top of trying to live your life is very motivational in a way. despite all that is wrong, you're proof that, as humans, we are a lot stronger than we realize.

    One thing I remember and try to tell all those who are affected...continue to fight as hard as possible. you will get tired. when you do, let others fight for you. Thats why family and a great support system is so key. we are all in this together in some way, shape or form.


    we may know you from this site only. some better than others. ill be damned though if i wont help when called upon. so just let me know if there is anything we can do.


    everything happens for a reason my friend. persevere through the storm. answers will come. dont be afraid to lean on others in the mean time to get your fight going. remember, Rocky wouldnt have won if it wasnt for Mickey in the corner pushing him.
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  23. #53
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    Originally Posted by ShayZ View Post
    Cleared or still have it? Thats what I had. ABVD Chemo and radiation.
    cleared as far as we know but I am still on a 4 month check up. when I get to the 5 year mark/1 year check ups ill be truly happy.
    You will too, just keep at it, stay positive, try different things. We here for you bro, maybe one day we can wear our radiation masks to a halloween party together lmao. hopefully they can figure out why your immune system keeps dropping, maybe consider another specialist.

    I used herbal supplements during my treatment even though my oncologist advised against it, I dont suggest choosing one or another but consider all alternatives at the same time. Look into cannabis oil or phoenix tears, it helped with the pain because I did not take any nausea medicine or pain medication for surgery/chemo/radiation.
    ***Positive Crew***

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  24. #54
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    Lost my aunt from a growing cancer that began in her knee. My mom was also diagnosed with breast cancer early on and she was able to get it removed and has been cancer free for around 7+ years. I try and support my community when I can.
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    Originally Posted by ShayZ View Post
    Sup man. Well cancer is gone, but I have a few small things wrong with me. They are honestly stressing me out.
    Take your own advice man, You're past the hard stuff and you have people that depend on you. You got this.
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    Excellent thread. It's good to keep life in perspective for the rest of us.

    We might think we're having a bad day, but really we are gifted with our health.

    Almost anyone can relate and lend support here. I lost my mother and grandmother to this **** disease that is cancer.

    RedRaider it pleases me in a way that I can't truly intimate that you're okay and in remission. I've always liked you, even on here. The world is a much better place with you in it.
    We need more people like you.
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  27. #57
    because MERICA that's why TheAmericano's Avatar
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    Has anyone talked about diet yet, if so I'll try to keep this short. Lots on info out there...

    I would look into "the China study" but if you don't want to read netflix forks over knives

    - Basically go for plant base protein over animal base. Not saying turn vegan, but maybe change your diet to 80% plant 20% meat.

    - Since I know this is BB most off you prob take some protein shake, Orgain Organic Plant Based Protein Powder is something t o look into


    But again as I said in my post above, you can do everything right and still get this disease. Prob low chance but cancer doesn't discriminate
    - I'm sorry; I couldn't hear your complaints over the sound of all this freedom!

    ~ Merica


    - Everybody wants to make it, but nobody wants to put in the work!
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  28. #58
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    is it possible to trigger male pattern baldness from chemo and cancer? a couple years ago in went through chemo and ever since then hair isn't what it was.
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    Originally Posted by ShayZ View Post
    Cleared or still have it? Thats what I had. ABVD Chemo and radiation.



    GJDM



    You can do it bro. Stay positive and keep grinding, its what we have to do.



    Sup man. Well cancer is gone, but I have a few small things wrong with me. They are honestly stressing me out.
    RR86 please dont link the wifey to this thread, I just dont know how to express myself in person at times, and I consider this a different circle. I dont want to stress her out with my feelings...

    I've been really down really. I don't know what to do.
    I really thought this was all over with but all these things are adding up and killing me inside. I guess I just am here to vent.
    I have thrombocytopenia, which is low platelets...
    - Julyish, platelets dropped to 23,000, when I had cancer they dropped to 43,000, which is the lowest they had been. Well, 23,000 scared me so I got a cat scan and it was all clear.
    - Docs tried Dexamethasone, and it increased my platelets for a few weeks and they crashed back down.
    - Docs put me on Predinosone of 80 mg, it worked for a few weeks and they crashed back down.
    - Last week I felt something wrong, asked to get bloodwork done 3 days earlier than usual, and platelets were at 6,000. Anything below 10,000 is essentially critical.
    - Admitted to hospital, got IVIG plasma infusions with IV drip.
    - 3 days later docs expected my platelets to be around 35,000 or so... Just 9,000.
    - Got an IV drip of rituxan Friday, going Monday to get IVIG again, and then Rituxan again thursday. This will continue for the next 6-8 weeks.

    Its depressing having to essentially go back to the "chemo" room, even though I dont have cancer.
    Its hard to be strong when I have so many people depending on me.... I have my employees at work, my sister whos my business partner, my mom and dad who rely on me every month to help support them, my little nephew who is just 4 months old, and I want to be there for him, and of course my wife. She puts up with everything, I know she doesnt want this, she didnt sign up for it, it isnt fair to her.

    When I say its all adding up its because I also have these issues.
    - Asthma out of no where. PFT last year had me at 99%, this year, 35%. My lungs are only blowing out 35% of estimated volume, meaning I am at COPD levels. No one knows why
    - Hypothyroidism, radiation killed my thyroid gland.
    - Skin issues. Doctors dont know what it is. Believe I have a connective tissue disorder like lupus but they arent sure really... My skin is just ripping if that even makes sense.

    I have been to Mayo Clinic, seen about 20 doctors there literally, have seen 10 specialists in Atlanta too. No one really knows what the skin or asthma issues. I guess they understand the platelet issue, but now theyre also talking about removing my spleen. Its just a lot.
    you ate in my thoughts. I have nothing of substance to say other than that. chit suxks
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  30. #60
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    Originally Posted by lolwhatthefuk View Post
    is it possible to trigger male pattern baldness from chemo and cancer? a couple years ago in went through chemo and ever since then hair isn't what it was.
    You could speak with an oncologist or a dermatologist but you're at the age where your treatment may have coincided with your natural hair loss.
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