There's always the possibility that much of what you think is muscle loss is fat loss. In other words, much of what you think is 'muscle' today, COULD be mainly fat...
I retired earlier this year. Hired an investment and retirement planner about 2 years ago. Smart to do so. Has given us a lot of advice, confidence, and comfort.
I, too, have a neuromuscular disease. I think your approach is pretty solid. My neuro (I realize we may be different in actual sickness) told me that I would not 'damage' anything - that if I can...